Emmy's Story Archive

That brings us to today. No chemo this week (thankfully), just more of a wait and see approach as we monitor her numbers and their anticipated drop. After completing a treatment run this tough she has historically needed multiple rounds of blood products (both blood and platelets) to get her through to the next step. Anticipating this, we have no intention of taking her anywhere far from the hospital.

Every time we do get to pass through the threshold of our own place, there comes a moment where a certain smile crosses our little lady’s face, the special one reserved for when she is extra happy, and it melts you into a puddle right there on the spot. We could turn around and get right back in the truck, the whole journey back home made worth it in that one moment.

...since we have been on this journey there have been an untold amount of people who have helped us out along the way. Everything from the incredibly generous donations, to the notes, gifts, messages, food, beverages, kind words, positive thoughts and all of it in-between. You’ve all been nothing short of amazing.

Greetings once again from the 7th floor of Children's Hospital Colorado. Today we are only here for clinic and day 3/5 of outpatient chemotherapy, not taking up residency like last week thank goodness.

Here is the sequence: Up (early, abruptly and not by choice), screaming (usually the children), coffee if you’re lucky, short-order breakfast shift, cleaning, entertaining, cleaning, entertaining, cooking, cleaning, refereeing, reasoning, begging, bargaining, bribing, cleaning, errands, cleaning, cooking, bathing, more reasoning and bargaining until the eventual and most welcome bedtime.

So whats next? Well, I’ll tell you...next week is currently slated to be her last week of chemotherapy treatment. Five horribly, torturous days with extra shitty (pun intended!) side effects is how we’re going to end this thing. After that, she gets some time to rest (about a month) before we can scan again. That will put us right back where we were almost a year ago.

We leave Sunday for Denver in preparation for early morning scans Monday at Childrens Hospital. This is the big day. These scans (MRI, CT, PET-CT) will paint a good picture of where we're at, a month out from treatment.

This is a mediport.