Emmy's Story Archive

Recently we have learned that our little Emmy has been diagnosed with a rare childhood cancer.

Little miss Emmy has been put through a number of tests including but not limited to: various blood tests, MRI, CT Scan, PET Scan, and bone marrow biopsy.

Off to Denver tomorrow for the next big round of treatment and an overnight at Children's Hospital. This will be the first time she gets all three chemo drugs since we began treatment several weeks back. We are a bit anxious to see how she will react but are simultaneously comforted being at Children's knowing that she is being cared for by the best.

So last week Emery went down to Denver for her last chemo treatment and all new images. She was put asleep and intubated for a new MRI and PET-CT so see what effect twelve weeks of chemotherapy had on her large tumor.

Surgery went well!

We were left standing there, a little bit sad watching our girl being carried away but mostly filled with the relief that we were finally at a place along this journey where our care team could operate. So we set up camp in the waiting room for the next five hours anxiously awaiting news of the procedure."

Positive (negative) results from these tests will not alter our current plan which has us continuing chemo through the end of April at the earliest. It is hard as parents to wrap our heads around that many treatments and that many times these caustic drugs have to work their way through our daughter's system but it is what needs to be done to ensure she will someday be cancer free. So, carry on we shall.

In other news, during the last visit to Children's Hospital Colorado where Emmy had a big chemo treatment she was also intubated for a new CT and MRI. This was to take a look at her tumor site checking for regrowth but also to see an image of her chest which is where this particular type of cancer would go next if continuing to spread. We are ecstatic to report that all scans came back clear and the good people on our care team are not seeing any indications of cancer!