Emmy's Story Archive

Today marks the beginning of week five of chemotherapy treatment where, all in all, things are going ok. She still battles nausea for days after each treatment but we seem to have a pretty tight handle on her medication regimen now, keeping the nausea to a dull roar.

In other news, during the last visit to Children's Hospital Colorado where Emmy had a big chemo treatment she was also intubated for a new CT and MRI. This was to take a look at her tumor site checking for regrowth but also to see an image of her chest which is where this particular type of cancer would go next if continuing to spread. We are ecstatic to report that all scans came back clear and the good people on our care team are not seeing any indications of cancer!

Emery was diagnosed when she was just 5 months old and since then it has been a constant rotation of hospitals, doctors, nurses, needles, port access, tubes, anesthesia, scars, blood, chemo drugs, endless car rides and so much puke. It is what she knows which, in itself, is both good and bad.

That brings us to today. No chemo this week (thankfully), just more of a wait and see approach as we monitor her numbers and their anticipated drop. After completing a treatment run this tough she has historically needed multiple rounds of blood products (both blood and platelets) to get her through to the next step. Anticipating this, we have no intention of taking her anywhere far from the hospital.

Greetings once again from the 7th floor of Children's Hospital Colorado. Today we are only here for clinic and day 3/5 of outpatient chemotherapy, not taking up residency like last week thank goodness.

This is a mediport.