Emmy's Story Archive

We were left standing there, a little bit sad watching our girl being carried away but mostly filled with the relief that we were finally at a place along this journey where our care team could operate. So we set up camp in the waiting room for the next five hours anxiously awaiting news of the procedure."

...little Miss Emmy's condition as been improving at a pretty fixed pace. The girl quietly napping in the crib next to us is a completely different girl from the one who was rushed down here in the back of an ambulance a few days ago. Pale, fragile, feverish, and sickly was how she arrived but as of this morning she is most definitely feeling more like herself.

So, next Tuesday we head down to Children's Hospital Colorado for another overnight chemo treatment, only this one is a little different. It is her LAST in this 40+ week course of treatments! After this last big dose of those lifesaving yet horribly caustic drugs, she will get a well deserved break.

Last week found us back on the 7th floor of Children's Hospital Colorado, a floor we've become so familiar with over the last 11 months or so. This time though, was different than all the others.

I do want to point out how beneficial writing about our story has been for Aja and I. We’re dealing with some pretty heavy stuff that comes with a mountain of information attached to it; to hold all that in your head without release, may in fact cause your head to physically explode.

The next morning we woke, haggard and sleep deprived as much from the arduous travel as from the two crazy children, who were jet-lagged and ornery. It was all made ok though as we woke in our new Denver apartment, Team Emmy’s new base of operations for the remainder of the journey.

Working on getting you a proper update on all things ladybug so stay tuned for that. In the meantime, check out this segment on TV8 in Vail all about our little girl and the wonderful benefit being held next Wednesday at Vendetta's in Vail Village.

...since we have been on this journey there have been an untold amount of people who have helped us out along the way. Everything from the incredibly generous donations, to the notes, gifts, messages, food, beverages, kind words, positive thoughts and all of it in-between. You’ve all been nothing short of amazing.

We leave Sunday for Denver in preparation for early morning scans Monday at Childrens Hospital. This is the big day. These scans (MRI, CT, PET-CT) will paint a good picture of where we're at, a month out from treatment.